Christie Mangir, breast cancer survivor, entrepreneur, and patient advocate, joins Harlan Krumholz to discuss what it means to be the “perfect patient.” Throughout her treatment, Christie felt pressure to do everything the doctor told her. At the same time, through a system of keeping spreadsheets on her symptoms, and a commitment to asking questions and seeking information, Christie became her own perfect patient—one who is engaged, informed, and self-advocating. Since her treatment, Christie has helped other patients dealing with the diagnosis and the decisions, self-care, and many unknowns that it comes with.
Bray became involved in healthcare when she was a participant in a study for which she received a heart device, and wasn’t notified when the study was ended prematurely. Bray’s condition, Patent Foramen Ovale (PFO) with migraines, greatly improved with her new device. But other study participants hadn’t fared so well. Bray started her own foundation, the PFO foundation, and became engaged with patient groups, research forums and conferences, and research advisory panels. Bray’s mission is to make research not just about the patients in the study, but for the patients in the study.
In this introductory episode, Dr. Harlan Krumholz explains the unlikely source of this podcast’s title and what he hopes this series will achieve.